Well, we spent yet another hour at the doctor’s office this morning. Ryley and Grace both have “big kid croup”. Whatever that is. Can’t do anything except treat the symptoms, so we’re loaded up on cough meds, decongestant, fever reducer, etc. Hopefully, we’ll get through the night tonight without either of them waking up coughing.
On a positive side (somehow this is a positive!), Ryley was FINALLY diagnosed as asthmatic. Why is this good? For the past two years, we’ve been battling with every single cold to keep him from pneumonia and dealing with a horrific, uncontrollable cough that would make him gag, and just rack his little body. Earlier this year, he was diagnosed with reactive airway disease, and given the “puffer” for when he gets the cough. We were in the doctor’s office two more times after that. This latest bout is #2 for the Fall, and we’re not even into November. I love our doctors….We have two that we see 98% of the time, and I refuse to let Ryley see anyone else now, given his history. Dr. Sternfeld was concerned about his breathing….the fact that he can’t take a full breath in without starting to cough, that he’s gagging when he does cough, and that he’s waking up constantly througout the night. The albuterol just isn’t cutting it. Then he ended up in the yellow zone on the peak flow meter. Now we have our own peak flow meter to check his levels, and another prescription for inhalent that isn’t just rescue meds. We go back next week for an asthma appt. Dr. Sternfeld was starting on his asthma plan when we left.
I am relieved. Not that he has asthma, but that it’s finally been recognized as such, and we can take steps to hopefully keep him from getting to the point he did five times last year. I feel more in control. Now I have the diagnosis, now I know what I can do and I can do it. Do I wish he didn’t have to deal with this? YES!!!!!! Just having that word attached to him physically means we did not escape fully unscathed from the NICU. It means he’s still not “normal” and that he still is a preemie and always will be. But having the diagnosis means we can take action, and will take action. I can help him. The shoe I was waiting for these past nearly five years has dropped. It’s not fun, but it’s surviveable.