Home » Autism » Why I’m always afraid to say it

Why I’m always afraid to say it

Little Man had a meds check-in with his psychiatrist last week. We haven’t seen her since August, right after school started and before the proverbial sh#@ hit the fan.  She asked, of course, how things have been going. We told her all the challenges during the first few months of school, and then I said the fateful words, “but  he seems to have settled in and found his groove.” I inwardly cringed. Do you ever experience this? Every time we get to a good place, and I actually verbally acknowledge we’re in a good place, things have settled down, he’s relatively calm and bouncing back quickly when he isn’t, the wheels WILL come off. We will go from sunshine to disaster within days of my  mentioning how well he’s doing.

So, yeah, his appointment was last Tuesday evening. I’m still waiting for the storm to hit. He did pretty well with his party, with only two little glitches. One, he had his own agenda, which was to open his gifts immediately. We, his parents, had a different agenda, particularly as the boys arrived at 6pm and were all hungry. Dinner first. He didn’t freak out, but every 30 seconds, he was moving towards his gifts. We finally gave him a set time. He settled down a little bit after that.

The second glitch came at 6:15 the next morning. There had been candy, punch, and little sleep. Little Man apparently had a sugar overload, along with a severe lack of sleep, which brought on puke-fest 2016.  It’s not fabulous to have pink puke all over your floor, a mere 2 feet from the bathroom, especially at 6:15 in the morning. He was totally fine as soon as he got it all out. The boys were not the least bit bothered by it.  Amen. I, however, took a bit longer to recover, and I looked at him like he’d lost my mind when he asked me to go get them donuts within minutes of throwing up. Um, no. I made them pancakes instead.

The time change can be another disaster in the works. He went to bed without a struggle last night, although hauling out of bed this morning, in the pitch dark, was a challenge.  They started state testing at school this week, and he apparently gave them some push-back. He detests routine changes, and testing is definitely a routine change. They’re being patient with him, giving him time and space, but also making it clear he doesn’t have a choice in actually doing the tests. It must be done.

I’m still sitting over here holding my breath, because I know it’s coming. Every. Single.Time I tell ya – it happens. Whenever I talk about how well things are going, a crash is imminent. The fact we’ve made it almost a week is miraculous.

8 thoughts on “Why I’m always afraid to say it

  1. At least it wasn’t like our eldest when he puked at the table. We cleared his setting away, and when we came back, maybe two minutes later he was back at the food. Love the application for donuts. The lad’s got both class and chutzpah! And well done for surviving intact!!

  2. I have had plenty of experience with this sort of cyclic pattern; in a previous long-term relationship I was parent to a child with severe Tourettes, ADHD and OCD and it would be very evident that he was about to enter a cycle of challenging behaviour, often just before specific events like birthdays, Christmas, school holidays etc.
    We would know it was coming and try to prepare for the worst, but there was always some sort of new twist that we hadn’t anticipated.
    I’m glad the party went well in the end.

    • That’s pretty much it – the cycle. He was in a very good place last school year. We’re getting back there, but spring break is in four days. He doesn’t do well with breaks.

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