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The Hardest Thing

Our kids have various social media accounts. We have rules – they have to let us be “friends”/follow them; we keep their passwords; if we tell them to take something down, they must comply (they’ve always been conservative); they can’t “friend” anyone unless we know who it is. We collect their phones every night. But all this isn’t really the point of my post today. Because I am “friends” with them, I do see what they post. I find it an interesting look into their days, their thoughts, in addition to a layer of protection over my babies.

Yesterday, Big Man posted a photo on Instagram of his Rock n Roll Half Marathon medal. He’s understandably proud of his accomplishment, and acknowledged the challenge of the race. He said it was the hardest and most rewarding thing he’s  done in his life. I’m so glad he sees it that way. I am thankful he doesn’t remember the truly most difficult thing he’s done in his life….that of surviving a birth 3.5 months too soon. He doesn’t remember having to learn to remember to breath. He doesn’t remember all the times he forgot to breath and his heart-rate would plummet. He doesn’t remember the blood transfusions. He doesn’t remember the eye tests for retinopathy of prematurity (I’m scarred for life by that one), the hearing tests, the ultrasounds on his head to watch for and then keep an eye on brain bleeds, the tape being ripped off his face by an insensitive night nurse, the daily weigh-ins, the numerous lines running to all parts of his body, the days he spent under the bili lights, the way the CPAP would push up his tiny nose; the various antibiotics he had, the tests too numerous to count, the times I would sit there by his isolette crying my eyes out, the day I fled the NICU when he had to have another transfusion and my heart couldn’t take sitting there and watching. He doesn’t remember me begging God for my son’s life. He doesn’t remember me begging God to block all those days from my son’s memories. He doesn’t remember.

That tiny boy was the bravest person I’d ever met in my entire life. He fought so hard, every day, for his life. He did everything on his terms, much to our frequent frustration. He obviously loved openly, so happy when any of his nurses talked to him or held him. He defied odds on a daily basis. He still defies those odds. But he won’t ever remember the truly hardest thing he’s ever done in his life. When I saw his post yesterday and read his words, I was so relieved that in his mind, that race was the hardest thing he’s ever done, and the most rewarding. For me, he is the most rewarding thing I’ve ever done. And I hold enough memories in my heart for the both of us.

8 thoughts on “The Hardest Thing

  1. Very moving post. I could feel the fear you went through during your baby’s first months. I’m lucky that none of my kids was premature. I can’t even imagine how hard that must have been for you. Your son has been a fighter from Day 1, and you are right to be proud of him.

    • It was a pretty amazing day. He finished his first half in under two hours, at 15 years old, and I PR’d it. I am SO proud of him, for so many things.

  2. First off, good for him 😀 Nice job! He must be so proud!

    But then, oh, yes, I recall reading of his earliness. You’ll probably never escape the fear and pain of those months. That was a really hard time for you. One of your greatest battles, and you kept hope. You should be proud too. ❤

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