Last Days

Oh lordy, but we are struggling through these last days. It seems an insult to have to carry on with regular school activities for one kid when two have been on their summer break for eleven days. My brain is totally not on reports, Open House, report cards, morning routines, nor on signing field trip/dance permission slips. This momma has checked out, and I do apologize to Little Man’s teachers and team.

He is having a rough go. They had a field trip yesterday. He wouldn’t say what happened, just that it was “horrible.” That may mean one small thing went awry, or it may mean he had a full-blown meltdown. Who knows, and I’m afraid to ask. There’s a dance at school Friday  night for the 5th-7th graders. We haven’t even discussed it. I have to keep reminding myself his Open House is Thursday night (can I send a surrogate, or would that be frowned upon?). I got an email from his SAI earlier today he has completely pushed back on being in the classroom for the 7th grade health class. While I feel the curriculum is important, appropriate, and not beyond his abilities/understanding, I don’t have it in me to fight him right now, nor deal with the fallout of pushing his boundaries. We’re both toast. My response to her was I was fine with him sitting this one out.

His anxiety is elevated. He’s done. He wants nothing to do with getting out the door in the morning. He has asked daily to take his plushy  to school (I’m still saying no to that one). He’s forgetting necessary items. He’s basically pushing back on almost everything. While I know he will have another adjustment period once summer does start for him, we are both so ready to be through this process of the end of the school year.

I looked back through my end-of-year posts through Timehop on my phone. So many of them reiterate this feeling – he’s over it, he’s stressed, he’s anxious, he’s ready to be done but he’s also afraid of the change of routine/lack of routine that comes with summer. No matter how much he matures and grows, change in routine and structure is an achilles heel for him, and it likely always will be. His tool box is forgotten by this point, and we all just hang on for the ride. It’s a bit brutal, and these are the days I would do anything to make this all right and better for him. This is when I raise a certain finger to autism, because it makes days that should be full of fun and excitement stressful and anxiety-ridden. Add to that fact his siblings are swimming, hanging out with friends, sleeping in and enjoying summer while he sits in a classroom, and you have a boy (and a momma) who is just over it. #bringonsummer

He’s Back

I”ve mentioned an uptick in Little Man’s anxiety as the end of the school year approaches. Much as we know it’s coming, the expected change in routine, the difference between scheduled and unscheduled, and even the differences at school as all the end-of-year activities come up throw him off. His anxiety shows in different ways – he’s harder on himself, he cries more easily, his outbursts are more frequent. He’s much better than he used to be, but the anxiety is part of him, part of who he is, and all his triggers are in play this time of year.

It’s been months since he’s come into our room during the night and snuck into our bed. He’s been sleeping better for a long time, and I contribute that to a growth spurt and hormone change. He’s also been in a much better, more relaxed and confident place this year. Whatever the causes, better sleep for him is better sleep for everyone.

He’s been in our bed, or tried to get in our bed, four nights in the last week. I woke at 3:30 this morning to a clicking sound. I initially thought it was Spouse getting a drink of water. Then I realized it was the familiar sound of teeth grinding and jaw-clicking. Spouse does not grind his teeth, and in my middle-of-the-night stupor, it took me a minute to figure out it was Little Man in our bed, grinding his teeth away. Sigh…in my bed, and grinding his teeth – a sure sign his anxiety is at a high level.

He has 10 more school days. We will have the inevitable fallout of him adjusting to the summer routine/non-routine, so I figure I have about a month of him crawling into my bed most nights. I’d just gotten used to him staying in his own room and sleeping soundly all night. That anxiety-fueled, teeth-grinding, flop-around-on-the-bed insomniac is back. Dang it all anyways.

Finished

Finished – that word applies to so many things today. It’s been the word on my mind most the last few days. Finished. We are finished, we have finished, we will finish, we have yet to finish. Sigh….I’m in a funky place.

Big Man and P finished their school year Friday. P said she actually didn’t want the year to end. Wait, what? From my point of view, it’s been an exhausting, mentally and emotionally draining, dragged out, up-and-down/high-and-low year. I was not sad to see the door close on this one for them.

I am proud of Big Man – he pulled it together enough to have an almost-respectable GPA for the semester. It was a near-miracle, considering how deep a hole he’d dug himself. But he did it. We did have to push, and check in almost hourly to make sure he was doing what needed to be done, but he did it. Oh trust me, his final report card for the year wasn’t amazing, but it was nearly as ugly as it had been. For that, we say “Thank you Jesus!”, and heave a sigh of relief. Pray God he’s figured it out and we won’t have to face these same issues next  year.

After a long season of training (for me anyways  – Big Man didn’t really train at all), we ran the Rock-n-Roll Half Marathon yesterday morning. I was really worried about this one, as my training was cut short due to various injuries. My last 11-mile run was five weeks ago. My last run of any significant distance was three weeks ago. My last run was a week and a half before race day, and that just 4 miles. I spent 10 days gently stretching, icing, heating, and praying it would come together and I’d be able to push through. I had a 2-hour massage. I went to the chiropractor. I faithfully used my foam roller.

Race morning arrived. There was a LOT of frustration early – parking was an unmitigated disaster. It took us nearly an hour to get into the lot from the time we arrived downtown, then we had a mile walk to the shuttle busses. We got on our bus at the time we should have been arriving at our corral. We were in the bathroom line when our corral started, and ended up crossing the start with a corral 9 behind our assigned corral. I’d decided with my training partner to just push for the goal we’d trained for – a 2-hour finish. I knew 2 miles in I wasn’t going to be able to maintain that pace – the three weeks without any significant running had killed me. I slowed to my old half marathon pace and regrouped. Three miles later, my IT bands started tightening and my knees started to hurt. I pushed on, with short stretches of walking, until I hit mile 7 when I knew I’d have to just let go of this race. It became a matter of finishing, and nothing else. I walked when I needed to – which was quite a bit – and ran when I could. There was a downhill at 9.7 that almost did me in. But I pressed on. My training partner finished (I was getting texts for her and for Big Man) – I was at mile 10 I think. Then  Big Man finished. I was closing in on mile 11. I was frustrated, in pain, tired, and so disappointed. At mile 12, I started running again, determined to finish the race running. I knew there was nothing structurally wrong with my body – just IT bands that like to knot up and make it feel like there are knives going into the side of each knee – and so I pushed, and crossed the finish at 2:41 – my worst half marathon time ever, by 16 minutes. I headed to the medical tent and had my knees wrapped in ice.

My training partner had a PR, under 2 hours. Big Man didn’t meet his time from last year of 1:58, but he really didn’t train at all (oh to be 16!). He finished at 2:09. But we finished. The race is more about the culmination of training – a cap to a season. I’m trying to let it go, the disappointment of a bad race. Training had been going so well. I’m trying hard to focus on the fact I ran my 8th half marathon and not everyone gets to say that. I am so proud of Big Man – there were 114 boys on the course in his division. He finished 51st of those 114. That’s pretty awesome, isn’t it? Out of 30,000+ people running (between the full, half, and half-relay), only 114 15-17 year old boys were running, and one of them was my son. I love that I got to share yesterday with him. What’s really fun  is being able to talk about it with him, remembering miles and sections like a football player will remember a play, a golfer will remember each hole on a course, a pitcher what pitch got launched out of the ballpark by which hitter. I love that shared experience. I’m proud of the fact he fought when things started to hurt; he didn’t give in when the course got rough, when he knew he wasn’t going to match his time from last year, when he got tired and wanted to quit. He finished. We finished.

Eleven more school days for Little Man. Then we will be finished completely with this school year. He’s hanging in there. He has had some increased anxiety – it’s so typical of this time of year for him. We will fight through, and then breathe another sigh of relief. It is so weird to manage two out of school and one still in, especially for the significant amount of time 2.5 weeks is. We’re almost finished.

Just Love Them

Eight years ago, I was flying home for my sister’s funeral. God, that sucked. It still sucks. Seeing the posts of when she went into Hospice, waiting for word, then when she passed, and then her services come up in my TimeHop – you just should be able to block some things from coming up in your social media memories. I miss her, especially lately when things have been such a struggle with the kids. I know she would have pulled up a stool to my kitchen counter, poured a glass, listened, and then would have given me some insanely awesome, sage advice. I know it.

Instead, I’m left with the last words she said to me, which were, “Just love your babies.” Lord, but I hope I’m doing her proud. And I guess when it comes right down to it, what better advice is there when parenting teenagers going through a ton of muck? Just love them. Everything else will fall into place. Love them enough to be strong. Love them enough to be consistent. Love them enough to stand by your rules, your values, your beliefs. Love them enough to help them become independent. Love them enough to not tolerate bad behavior. Love them enough to hold them accountable. Love them enough to require them to be respectful. Love them when they hurt. Love them when they’re unsure. Love them when they’re doubting themselves. Love them when they make mistakes, and help them learn to pick themselves back up. Love them enough to push them when they need to be pushed. Love them enough to let them know when they need to pull back. Love them enough to let them be independent while under your watchful eyes and the safety of home, and a known environment. Love them enough to talk with them, ask questions, know who their friends are, what their dreams and desires are.

I consider my sister’s words often – not just those last words, but all the words she gave me. She loved fiercely. She took such joy in living. Her laugh filled the room. Her sarcasm inspired all her siblings. She was our Queen. She momma-bear’d with the best of them – she taught me how to momma bear. She kept us together, reminded us the value of family, no matter how unconventional our family was/is.

She’s been hovering this week – I’m sure for my parents and my siblings, her children, her Spouse too. This year has been so difficult, and I’ve found myself in a deep, dark place too frequently. Nothing was getting through. But lately, I’ve heard her, and her reminders to just love them. I can do this. She’s gone, but her lessons live. 11:11

 

My sis with baby Little Man E and Deb

Your Guess

It’s been pretty quiet on the autism front in the Herd household this year, thank the good Lord. I said it earlier this year, but it’s worth saying again….we desperately needed a quiet, drama-free year for our Little Man. Last year was dreadful, draining, overwhelming, awful. But you know in the wonderful world of autism, there are lots and lots of roadblocks, speed bumps, dips, turns, and storms. They’re not unexpected, but still disappointing when they happen.

Little Man has almost five weeks left of school. Good golly – that just sucks, especially as the bigs are out in two weeks. He knows the end is near. They’re in the middle of the standardized testing. He wants it over with quickly. Routine has been busted a bit at school because of the testing, but he’s also aware the end of the year is coming,  which means an even bigger routine bust. He does not do well with changes in, nor lack of, routine. I see his anxiety levels rising. I see some old behaviors returning. I see less tolerance and patience from him.

I’ve had a couple emails from his SAI at school letting me know he’s pushing back on work, he’s spending more time out of the classroom again, he’s pacing, his breathing is elevated. She wanted to know if I had any clue why this  might be happening. Uh, nope. Your guess is as good as mine. I could point to any number of things, but there doesn’t seem to be one thing we can say, “Yes, that’s what’s making him behave this way right now.”

We keep reminding him of his tools. We keep reminding him what he’s capable of. We keep reminding him the many successes he’s had this year. None of that changes whatever’s going on in his head, nor how he deals with life. So we do what we can at home. They do what they can at school. We pray this is just a blip and not a sign of long-term struggles.

I know better than to borrow trouble, but next year is his last year of middle school. There’s a new building with classrooms for the 8th graders. They will do things a bit differently for 8th grade than he has in sixth and seventh. He will have to participate in his IEP meetings. And the transition to high school will start. He knows it’s coming. I can’t help but think that may be hanging over him a bit, even though it’s in the distance. I know it’s hanging over me.

So we hang on for the ride the remainder of this school year, hoping this is just a temporary dip. But as for what the root cause is of this particular dip, your guess is as good as mine. And thus goes life on autism street.

Just when I thought I was done with all that

I quit working full-time just before Big Man started Kindergarten. I wanted to be involved at my kids’ school….working in classrooms, being part of PTA, going on field trips, dropping off and picking up….It was important to me. And so I was. I helped in all three classrooms, almost weekly. I was on the PTA. I ran three book fairs, assisted one, and worked the rest. I went on more field trips than I can count. We went to art festivals, performances, band concerts, Back to School nights, and Open Houses. I felt like we lived there, but it mattered that we were involved. I knew the kids my kids were with every day. I knew a lot of those kids’ parents. I  knew the teachers, the staff.

As my kids entered middle school, I began backing away. They needed some space to become independent. I needed to not be quite as involved. I did volunteer for some things, and we still went to all the awards, concerts, and presentations. But I wasn’t in classrooms every week. I went on one field trip. I helped with one book fair. Even with Little Man’s school being more of an extended elementary, I’ve still held back from being involved. I’ve been burnt out (although that doesn’t mean I regret for one second all we did when the kids were in elementary school). Plus, my kids don’t need me hovering, constantly in their space.

I’ve always been one who struggled to say no, though. So I’ve recently felt myself being sucked back in. It started innocently enough – hosting a team building dinner for cheer last Fall. But then you start talking to this coach, or that parent, and suddenly you’re a team mom, and on the board of the Athletics Boosters Club (true story). Yeah. That. At the high school no less. Don’t get me wrong – I’m happy to help, and be involved. I just thought I was done with all of that.

I’m not quite sure how my kids feel about it. I haven’t invaded their space much, yet. But I’m starting to know people, things that are going on at their school, coaches, teachers.  I’m hoping to not be on campus while they’re on campus, and trust me, I won’t be chaperoning any dances, or field trips.

I think it’s important for our kids to see us involved, taking an active role in their education, including extra-curriculars. I think it’s more important now than an  in elementary to know the all the key players, to remain aware. They might be pushing to become independent, which they of course need to do, but that doesn’t mean I get to check out. So I’ll be a team mom, and I’ll be an Athletics Booster board member. I’ll jump back in to being an actively involved parent. And they’ll like it, darn it.

Enough

I’ve said it before, but seriously, you couldn’t pay me enough to re-live high school. Oh, there were great things that happened to me, so many amazing experiences. But holy wow, the stress, the pressure, the hormones, the emotions, the jerks and queen b’s. It was really hard – trying to live up to expectations, real or imagined, while trying to figure out who I was and what I wanted to be, while trying to  make sure I did what I had to do to get into college, while dealing with friends and classmates going through the exact same process. I remember crying a lot. I remember dealing with ulcers and other stress-induced illness by the time I was fifteen. I remember pushing myself harder than anyone else – the drive to be “perfect”.  And this was all in the time where rumors were spread via those folded up notes a-la 80’s, and during lunch or at post-game dances.

I can’t begin to imagine what it’s like for teenage girls these days. It was hard enough to get through each day before there were phones and cameras around 24/7. Social media has been around most of my kids’ lives. They live their lives on blast. Remember when you had a bad hair day in high school? There weren’t any cameras around to capture it. Or if you fell walking across Senior Court, people would talk about it, but there wouldn’t be video evidence to spread the humiliation even further.  You would likely have to see that boy you really liked walk his newest girlfriend down the hallway, but you didn’t have photos of everything else they did in your face every day. I can’t imagine the pressure girls (and likely boys too) these days have to always look perfect, be perfect, not let things get to them in public. I think they’ve had to grow up much more quickly than we did.

With that all in mind, I want my babies to know they are enough for me. Just them, just as they are.

You are enough…

You are not what you wear. You are not what uniform you might put on for whatever sport you choose. You are not your success on the field. You are not how many honors or AP classes you take. You are not even the grades you get or the test scores you earn. You are not how many friends you have. You are not whether you date anyone before you’re sixteen. You are not whether you ever date. You are not whether you take someone or get asked to Homecoming or the Prom. You are not how many pictures there are of you in the yearbook. You are not what college you might get into. You are not how clean your room is, or if you finish all your chores without being told. You are not whether you finish that half marathon at a faster pace than last year. You are not your golf ranking. You are not whatever role you get for recital or Nutcracker. You are not the IEP meetings we go to annually. You are not the papers you write, the projects you finish, the number of books you read, the car you drive. You are not the money you earn, the house you live in, the career you decide upon. You are not the Facebook posts, the Snapchats, the Instagram photos, the re-tweets.

You, just you, you are enough. You are loved, you are cherished, you are wanted, just as you are. Remember that……There’s going to be so much pressure in your life to do, to be, to look everything “perfect”. But none of that makes you more. They are just what you do, how you look. They are accessories. You – you are enough.