Hey, they’re still alive, aren’t they?

When the kids were little, I learned it was okay for me to take time for myself. It was necessary to maintaining my sanity – those once-a-month bunco nights, book club, the occasional GNO….When they were older, I started to take weekends – scrapbooking retreats and girls’ getaways. Every time I came home though, I felt I was being punished for having had the nerve to go out/away. The house would be a total disaster – kitchen covered in food and dishes, cups everywhere, everything anyone had worn while I was gone tossed wherever, shoes and blankets all over the floor. I’d cry and yell in frustration. I’d bang things around, making sure everyone was aware I was unhappy with the state of our home. It didn’t make anyone feel any better.

Years passed. I continue to do book club, Girls’ Night Out, weekends away. Sometimes when I come home, they’ve taken the time to clean up, knowing it will ease re-entry for everyone involved.  Sometimes it’s a total disaster. I never really know what I’m going to get, but even if it’s relatively clean, it’s not how I would do it. Counters aren’t wiped down. Blankets aren’t folded on the back of the couch. Shoes aren’t in their baskets. There are likely towels hanging over the chairs in the backyard. The dishwasher isn’t loaded the way I load it (and everyone knows the moms load dishwashers the most effective, efficient way possible to make the most of every inch, right?).  The trash and recycling bins are probably overflowing. Floors likely aren’t swept. I’ve learned to let it go.

Hey, the kids (and pets) are still alive, right? They’ve probably been off-schedule, the boys likely haven’t taken their meds every day. But they’ve been fed. They’ve probably done some fun stuff with dad. They got a break from the way mom does everything. No, it isn’t the way I do things, but everyone is still intact, and the house can be put back to order.

I got home from my weekend in Chicago yesterday. I’d been gone for five days. The house was a DISASTER of the first order. I was so tired, and my luggage had been put on another, much-later plane than mine, so I was dealing with that too. I walked in the door, happy to be home and see my babies. I saw the mess, and sighed. I gave the boys a hug, greeted the fur herd, dropped my bag, and set about putting things in order, my order. But I wasn’t mad. It is what it is. I had an amazing weekend away. My kids had a great time at home (well except for the part both Big Man and the Princess’ phones took a dunking and had to be replaced). And hey, they were still alive, right?

Rollin

Holy wow – After that ridiculously long countdown to real summer, we have just two weeks before the Herd heads back to school. (insert bad words here) Where in the ever lovin where did summer go?

We’ve had an incredibly busy, super fun summer, but it has flown by. We’ve rolled from one thing right into the next, or at least I have. School finally ended for Little Man. The following Monday, he started tech camp. Big Man and the Princess were never really “off” as – I may have mentioned this before – high school sports continue to practice through summer. The last day of tech camp, we went to the showcase presentation, and then hit the road for Palm Springs. We spent four glorious days poolside, hanging out with our friends and neighbors who joined us, eating, drinking, sunbathing, reading, playing games, and golfing.  It was HOT, but we don’t care when we’re there. We’re in or right next to the pool all day long.

I was home for 1.5 days, then left for my summer scrapbooking retreat in  Big Bear. In four days there, I managed to finish my 2015 book, as well as our Spring Break Utah trip book. (pats self on back) It was much-needed momma time with friends. We walked by the lake each morning, talked, ate, laughed, and scrapbooked. The only bummer was our usual massage therapist wasn’t able to be there due to injury. I’d so been looking forward to that 90-minute massage. Sigh….other than that, it was a beautiful weekend.

After Big Bear, I spent three days running around like a crazed person, getting the house ready for a cousin invasion. Nine of them began arriving on Wednesday. They trickled in until Saturday, when we had everyone here. Did I mention that was also recital weekend? Yeah, that. We had five fun-filled, busy days. Oh, I won’t lie – we did take plenty of time to sit in or next to our pool, but we were definitely on the go for much of the time.

The day after cousins left, my bestie and her four teens arrived for a week-long visit. We didn’t really stop from the minute they arrived, but oh my…..so much fun! We forget how awesome our city is until people are here and we’re taking them all over. We hit Mission Beach, they kayaked La Jolla Cove, we went to the movies, spent a day in Coronado (on the beach and at the beach bar at the Hotel Del where there was a Norman Reedus (aka Daryl from Walking Dead) sighting (it was ComiCon weekend in San Diego and a bunch of stars were staying at the Hotel), watched the ponies race in Del Mar, golfed our club (K and I rode along while our spouses golfed), went wine tasting in Ramona (you get premium service when your FIL is the President of the Ramona Valley Vintner Association), and took in a Padres game. Yes, all of that. The day they left, I had a work event. I got home that evening and absolutely crashed.

This is the longest break we’ve had all summer……and I leave tomorrow for five days in Chicago. More fun…..a day a Lollapalooza, some beach time if the weather permits, and a Cubs game, not to mention more time (sans children this visit) with the bestie! Then I’ll be home for two days before we leave for a long weekend at my parents’ in Phoenix. We’re home from that trip for two days and the kids go back to school.

Are you tired? Cuz I’m tired. We’ve blasted through this summer, rollin from one fun thing to the next. I think I need a summer to recover from this summer. We’ve had pool time, bbq’s, baseball games, beach days, and movies. We’ve spent time with family and friends. We’ve soaked it all in, taking full advantage of every minute. I can’t believe it’s ending in two weeks, and we’ll be in for another long haul of a school year. I’ll put the pool towels and basket of sunscreen away, tuck the beach chairs onto their hooks in the garage, stow the cornhole game in its case, and say goodbye to summer 2017.

You can’t leave home without it

My bestie and her kids were here for a visit a couple of weeks ago. One of her daughters truly speaks Little Man’s language. They live on the same autism planet. They get each other, which is awesome. It also means we spread all kinds of autism awareness when we’re all out together.

We were out at lunch one day. The two of them sat at one end of the table, lost in their own combined world. BFF and I maneuvered them through food and drink choices, ordering, keeping them calm at the table, and getting through the meal. At one point, BFF looked at me and said, “There’s no vacation from it.” Yep, there’s no vacation from autism.

These babies of ours take it with them every day, all day. When we go out, when we shop, when we vacation, when we sit around the pool, when we go anywhere, autism comes with us. We can’t leave home without it. We can’t take a day off. We can’t simply forget to put it in the suitcase like that bottle of sunscreen that was left behind. Some days, some hours, that sucks more than others. Some moments, it’s perfectly fine.

We had highs and lows over the course of the week. It comes with the territory. I think my favorite part was their simple excitement of seeing each other, talking about their shared interests, and when he pulled out his sketch pad and pencils after she brought hers to the kitchen table. I feel blessed to watch them together, their particular bond.

We took them to a baseball game their last night here. They both rocked it, their way, which was completely fine. iPads, headphones, and phones in hand, they were fairly oblivious to the game, but they were there with the rest of us. Baseball the autism way.

We can’t leave home without autism, but we can see something people who don’t live it can’t see…we can see the purity of their wins, their strengths, their particular abilities.

Guest Blogging

When I started blogging 12 (yikes!) years ago, it was mostly for me – to tell my story, to process life, to get support. My writing has evolved over the years, and enabled me to connect, as well as reconnect. What a privilege! To have someone I respect deeply, and appreciate even more, ask me (a second time!) to write a guest post is an honor, as scary as it is. It took me a few months to work out how the prompt/topic for this year with Miracles in the Mundane, but I think it worked out. Check it out here, and while you’re over on my dear friend’s page, give her some love. She’s an amazing writer, momma, friend.

Recreate, Re-Create, and Create at Miracles in the Mundane

Happy Wednesday

 

Huddle

We have two more weeks before our kids are on spring break. It seems an eternity since the holidays, so we are all looking forward to a much-needed break. The Herd will be headed out on an RV trip to some National Parks. We had invited a few other families along, but it didn’t work out for either of them to join us, so it will be just us – just the five of us. While I was super bummed our friends couldn’t come along, I’m now grateful for the time we will have as a family.

I’m feeling we need a family huddle – a time to re-group, reconnect, heal some wounds, help recover from some lessons, push a re-set button. It has been yet another haul this school year. We’ve had some really good things happen, but we’ve also each slugged our way through some pretty heavy stuff. I think we could each use some time to lick our wounds, figure out what we can fix, how we can fix it, what we need to move on from, what lessons have been learned, how we can communicate our needs to each other much better than we have been. We can remind each other all the great stuff about us.

Oh, it won’t all be serious stuff over the whole week we’re gone. There will be adventures – lots of hiking and biking. There will be lots of pictures, because that’s what I do. I’m already planning the scrapbook for this trip in my mind (and on Pinterest). There will be music, food, games, books, late nights, blessed mornings. Someone will say something funny and it will become part of the fabric of our family – another story to tell in years to come. We will see amazing things, go amazing places. There will be meltdowns, arguments, frustrations, but those are all part of building memories, right?

I just feel we need this time to figure out who we are as a family once again. I cannot wait to see the places we’re going to see, but more than that, I cannot wait for the time together, away from tv, friends, distractions, training schedules, classes, homework, practices, computers.  We will be contained in one RV – no separate bedrooms to run off to and close everyone else out. I’m sure that may sound like some form of torture for my three teens, but I think they’re looking forward to this as much as I am. The time with them still under our roof is speeding quickly by. I’m grateful to have the chance to be with them, experience something new for all of us.

Does your family take huddle time sometimes?

Diffability

Nope, that isn’t a typo. It’s a new word we made up this weekend. It’s our word.

We flew up to Northern California over the weekend to go to my niece’s graduation party. Flying is almost always an experience with Little Man along. When you fly a certain airline, without assigned seating, a whole new layer is added. On top of that, I was flying with all three kids, but no other adult. The last time we flew this airline, Spouse was with us, so when they told us only Little Man and I could pre-board, it wasn’t a big deal. I knew he had my back and would be with Big Man and the Princess. I was a little stressed out they would tell me we would all have to wait for our boarding group, or Big Man and P would have to board by themselves. Bring on the anxiety. I figured I would just ask if we could all pre-board together, and see what happened. Everyone was amazing, and the answer going and coming home was a resounding, “Yes! Of course!” Amen.

Bring on the Diffability. If you have a child with autism, and you ask to pre-board, you are given a card which states, “Pre-board by reason of disability.” I held the boarding passes on our way out, so Little Man didn’t see it. I saw it though. I sent a text to my sister about it right when they gave it to me and I saw that word. It was a bit of a knife in the heart. I don’t think of him as “disabled.” I know his autism is considered a disability, I just don’t normally see that word applied to him, even though I’m aware it is, by definition. On the way home, I did give him his boarding pass, not even thinking about that statement on the card.

My cookie is a smart cookie. Of course he saw it. I saw him look at it, then go silent for a minute. Then, “Mom, I don’t really like that word. I’m not un-able, I’m just different. I don’t think of myself as disabled.” Well, son, I don’ think of  you as disabled either. I wish there were a better word. Maybe someday there will be. I said to him, he’s Diff-abled….differently-abled. He has a diffability. That is much easier to swallow than “Disability.”

We know that vocabulary changes. Words which used to be accepted are now considered derogatory. What’s acceptable now wasn’t even thought of then.  Perceptions change. He’s autistic,  yes, but disabled? Nah. He’s Diffabled. That’s our story and we’re stickin to it.

Single digits, folks

Nine. More. School. Days. NINE!!!!!!!! Well, let me clarify….Big Man has just three left. Yeah, our high school district and middle/elementary districts cannot seem to get on the same page. Trust me, it totally blows. But I digress.

I’m barely making it. The school nurse called yesterday morning – Little Man had a headache and upset stomach. No fever. I didn’t argue – just got in my car and picked him up. He’s home again today. Still no fever, just a general not-feeling-good kind of feeling. He is a bit pasty, I’ll give him that. I just didn’t have the energy to argue with him this morning. There are days I think how I would feel to have to sit at a desk, surrounded by kids, trying to learn, while feeling totally icky. That was my thought this morning. I wouldn’t want to do it, so why would I make him suffer through that? If this were October, or even March, he’d totally be at school. Late May? Forget it.

I think we’re done with school projects. I’m praying we’re done with school projects. If I have to go to Michael’s or Staples to get one more tri-fold, I might lose it completely. Thank goodness 8th grade doesn’t have any “days” like sixth and seventh grade – no Greek Olympics, no Renaissance Fairs, no Colonial Days for 8th grade. We’re done with all that. Can I get an Amen?! My creativity is tapped out, for real.

The most depressing thing going through my head right now is that summer will not bring any respite. Cheerleading continues, Monday through Friday, at 6am. I kid you not. Then Big Man has cross country 9am – 11am, Monday through Friday. Ballerinas do  not get summers off, so we will continue at the studio five days a week, with recital at the end of July. I WANT TO SLEEP IN!!! My summer is being held hostage by high school sports. We’re trying desperately to figure out when we might be able to squeeze a little vacation time in. It doesn’t look promising. Weeks off from cheer, dance, cross country, and my work events are not coordinating at all. Something will have to give. We need to get away. We need some real summer. There’s no way we’re going to have any kind of energy come the fall and  new school year if we don’t get a break.

But there you have it – we’re down to single digits as far as this school year goes. We’ll get there. It won’t be pretty, but we’ll get there.